Groups


Group Basics

  • Members: 32
  • Category: Health & Wellness
  • Type: public
  • Location: Browns Mills, NJ
  • Date Founded:
  • Group Owner:


Join this group!

Recent Activity

    No activity since your last visit





Description

Purpose -This Group is for moral and spiritual support for sufferers of Sarcoidosis. Mission Statement - To seek a cure is the dream, Only God can make dreams come true; So Research and Prayer must join forces to defeat this disease. Our mission is to raise awareness and inform sufferers of new advancments and pray for results.


Forum Topic Posts Topic Creator Last Post
National Sarcoidosis Awareness Month
1
Calabash


Calabash


Suffering
2
ChaplainStevens


Llynn
  • March 07, 2010 by:
  • Llynn


Bernie Mac
2
ChaplainStevens


ChaplainStevens


Prayer from Siloam
1
SiloamPool


SiloamPool


New Info
1
ChaplainStevens


ChaplainStevens


a cure for the body
1
Help_Save_Lives


Help_Save_Lives


For good info on Sarcoidosis go to this site
1
ChaplainStevens


ChaplainStevens


Treatment for Sarcoidosis
4
ChaplainStevens


ChaplainStevens


Take care of your eyes
2
Calabash


ChaplainStevens


News Articles on Sarcoidosis
3
ChaplainStevens


ChaplainStevens


View all topics


Group Photos (12)


Announcements (9)
ChaplainStevens

ChaplainStevens

September 2009
Hike for Lung Health Team Sarcoidosis, Chicago
The Foundation for Sarcoidosis Research will partner with the Respiratory Health Association of Metropolitan Chicago and other community health organizations in raising awareness of and financial support for lung diseases through the first annual Hike for Lung Health.



ChaplainStevens

ChaplainStevens

This study will determine if atorvastatin (Lipitor), a widely used cholesterol-lowering drug, can help patients with pulmonary (lung) sarcoidosis and replace or reduce the need for patients to take steroids, such as prednisone. Sarcoidosis is an inflammatory disease that can affect nearly any part of the body. Pulmonary sarcoidosis may resolve on its own or it may progress to irreversible lung damage, disability, and death. Many sarcoidosis patients are treated with prednisone, but the drug is not effective in all patients, and it can cause serious side effects, such as high blood pressure, sugar diabetes, eye cataracts, and bone thinning.

Patients with stage II or III pulmonary sarcoidosis between 18 and 70 years of age who require prednisone may be eligible for this study. Candidates are screened with the tests and procedures described below.

Participants are randomly assigned to one of two treatment groups: one group takes atorvastatin; the other takes a placebo (a look-alike pill that has no active ingredient to fight sarcoidosis). Both groups take the pills by mouth once a day for 12 months. When treatment begins, participants begin to have their prednisone dosage tapered (reduced). The tapering is done over 8 weeks until the dose is reduced by 90 percent. Patients are evaluated periodically to determine if the two groups differ in how long they can remain on the reduced dose of prednisone without having their symptoms recur, requiring an increase in the prednisone dose. A full battery of tests is done at the initial screening visit and at the 26- and 52-week follow-up visits, requiring hospitalization for 3-5 days. Additional interim outpatient assessments are done at 6, 12, 18 and 36 weeks.

The full battery of tests at the initial screening and the 26- and 52-week visits includes the following:

Medical history, physical examination, blood and urine tests, assessment of disease severity and activity.
Questionnaires.
Chest x-ray (CXR) and computed tomography (CT) scan.
Abdominal ultrasound.
Six-minute walk test (6MWT): test to see how far the subject can walk in 6 minutes.
Exercise testing and blood gases: Patients exercise on a stationary bicycle or treadmill while their heart and lung function are monitored. During the test, arterial blood gases are measured to determine the amount of oxygen and carbon dioxide in the blood.
Pulmonary function tests (PFT): Patients are asked to breathe deeply and, occasionally, to hold their breath. They may be given a medicine called albuterol that dilates the airways.
Maximum incremental ventilatory performance test (MIVP): Patients breathe normally through a mouth piece. The test system makes it increasingly difficult to inhale. Patients stop when they feel fatigued.
Exhaled nitric oxide and carbon monoxide (Exhaled NO and CO): Patients breathe out into a tube that collects exhaled air (gases).
Bronchoscopy and lavage: The patient's mouth and throat are numbed with lidocaine; a sedative and morphine-like drug are given for comfort. A tube is passed through the nose or mouth into the lung airways to examine the airways. Saline (salt water) is then injected through the bronchoscope into the air passage, and a sample of fluid is withdrawn for microscopic examination. Patients who do not have confirmation of their lung disease may also undergo biopsy at the time of lavage. For the biopsy, a small piece of tissue is extracted from the wall of the breathing tubes (bronchi) or the lymph nodes.



ChaplainStevens

ChaplainStevens

Comedian Bernie Mac died last weekend from complications from Pnuemonia, but many didn't know he had Sarcoidosis and on oxygen prior to contracting Pnuemonia. Reggie White had the same condition.