Groups


Sickle Cell Anemic/Cancer Children/ Cancer

http://groups.blackplanet.com/theirstory

Group Basics

  • Members: 9
  • Category: Family & Home
  • Type: public
  • Location: Patchogue, NY
  • Date Founded:
  • Group Owner:


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Description

Hello my name is M'Elena, I have a son named Dareryq(pronounced Der-rick)he has Sickle Cell Anemia(SS1 type) he was diagnosed at three weeks old. Ever since his first crises at five months old, he has been hospitalized 20 times, many blood transfusions, his disease has limited not only his lifestyle, but my mother's and mine. At the age of four, he developed Acute Chest Syndrome(ACS),due to the neglect of his specialist's. After being put into pediatric ICU, in order to save his life he was put into a drug-induced coma, intubated, and put on a ventilator( to breath for him), an exchange-blood transfusion,Methadone, Fetanyl, and other medications. Dareryq is now 8 yrs old and doing a lot better. For the last 8 years, my life has come to a halt,my longest lasting job is the one I've had for the last three years. We are frustrated and been isolated. I know we are not alone in this life-long battle. I started this group for parents of SCD children/ sick children with cancer.


Forum Topic Posts Topic Creator Last Post
What Is Sickle Cell Anemia?
2
helena27


Mista_Rollin


Happy Holidays!!!
1
helena27


helena27


Treatments
1
helena27


helena27


How to get tested . . . . .
1
helena27


helena27


Update . . . .
1
helena27


helena27


LIFE ESSENTIAL YOU MUST INCLUDE WITHOUT FAIL
2
Sister_Somayah


helena27


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Group Photos (4)


Announcements (2)
helena27

helena27

CALLING ON MODS!!!

I need some people to help me manage this group and increase the membership. I know there are a lot of people on Blackplanet that have the disease, have known or cared for someone with this painful disease.

Also, I want parents who care for children that battle Sickle Cell Anemia and Cancer to be more vocal & proactive when it comes to awareness.

I'm pushing this group which increases people to lobby for more funds when it comes to research & finding a cure for this disease.

Wishing You All Well,
M'Elena



helena27

helena27

Hey All,

Wishing you all a Happy New Year!!! Dareryq is going on 13 in May. His life is still limited due to the pain he feels a lot. He is a fighter and has become a advocate for the research & cure of SCD. His group can be found on facebook called What Is Sickle Cell About? Stories from kids & people living with SCD. I hope his story of strength & courage give other children & their parents Hope.

Sending all my love,
M'Elena