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HEY BP THANKS 4 ALL THE LOVE AND SUPPORT YALL BEEN SHOWING ME.
I`M A 23 YEAR OLD FEMALE LIVING WITH SICKLE CELL DISEASE.
I`M A (FBI) FIRM BELIEVER IN CHRIST.
LOVE TO JOKE AROUND,I`M FUNNY HA HA HA SEE TOLD YA LOL. I`M THE LAST OF MY BRADY BUNCH FAMILY LOL.
Imagine you have an incurable illness.
Imagine this illness can cause ten times the pain intensity of extreme labour.
Imagine you go into a hospital and no one seems to know what is wrong with you.
Now imagine explaining to a doctor why you need so much morphine it would kill a normal human being several times over.
Now imagine you are accused of being a drug addict.
Now imagine that without adequate care you could die.
Now imagine you have Sickle Cell Anaemia.
MY PAIN
BORN
Into a world filled with pain
Constant fights
People always in my face
Around my body
In my soul
Pain
Is not an option I can turn off
It is one with me
Growing as I grow
Becomimg just as wise as it was the day before
See
You can not understand my pain
Unless
You are one of my brothers and sisters
Who wake in the middle of the night
to be rushed to a hospital
to be touched and poke with needles in my arms
tubes down my throat
Eyes rolled in the back of my head
You can not understand my pain
Sitting in a movie theater having fun
The next minute curled up in a ball because the pain has won
You see
My pain gets worse by the day
And it is here to stay
Like I said
I was born with this pain
And forever
Pain
Will be a part of
Me.
Disease Description:
Sickle cell anemia is an inherited blood disorder characterized primarily by chronic anemia and periodic episodes of pain. The underlying problem involves hemoglobin, a component of red blood cells. Hemoglobin molecules in each red blood cell carry oxygen from the lungs to body organs and tissues and bring carbon dioxide back to the lungs.
In sickle cell anemia, the hemoglobin is defective. After hemoglobin molecules give up their oxygen, some may cluster together and form long, rod-like structures. These structures cause red blood cells to become stiff and assume a sickle shape.
Unlike normal red cells, which are usually smooth and donut-shaped, sickled red cells cannot squeeze through small blood vessels. Instead, they stack up and cause blockages that deprive organs and tissues of oxygen-carrying blood. This process produces periodic episodes of pain and ultimately can damage tissues and vital organs and lead to other serious medical problems. Normal red blood cells live about 120 days in the bloodstream, but sickled red cells die after about 10 to 20 days. Because they cannot be replaced fast enough, the blood is chronically short of red blood cells, a condition called anemia.
Inheritance
Sickle cell anemia is an autosomal recessive genetic disorder caused by a defect in the HBB gene, which codes for hemoglobin. The presence of two defective genes (SS) is needed for sickle cell anemia. If each parent carries one sickle hemoglobin gene (S) and one normal gene (A), each child has a 25% chance of inheriting two defective genes and having sickle cell anemia; a 25% chance of inheriting two normal genes and not having the disease; and a 50% chance of being an unaffected carrier like the parents.
THANK GOD FOR MY MOM SHE HAS BEEN BY MY SIDE FOR EVER EVEN WHEN I WOULD BE SICK IN THE HOSPITAL SHE NEVER LEFT ME SHE WOULD BE THERE FROM MY ADMISSION DAY TO MY DISCHARGE DAY, GOD BLESS U MOM I LOVE U SO MUCH.
Signs and Symptoms.
Teens with sickle cell anemia may develop jaundice (pronounced: jon-dis), a condition that results from the high rate of red blood cell breakdown. Jaundice can cause the skin and the whites of a person`s eyes to develop a yellowish tint.
ME AND MY BRO IN GEORGETOWN GUYANA 2005. HE ALSO HAVE SICKLE CELL BUT I LOVE HIS STRENGTH.
People with sickle cell anemia also may have bouts of pain in the chest, stomach, arms, legs, or other parts of the body. This is caused by sickle cells blocking blood flow through the blood vessels. Feeling tired and having trouble fighting infections are also common among teens with sickle cell anemia, and they may grow more slowly and reach puberty later than other teens.
DOCTORS THOUGH I WOULD NOT HAVE LIVE PASS THE AGE OF 3, LOOK AT ME NOW 15 YEARS LATER.
Any and all major organs are affected by sickle cell disease. The liver, heart, kidneys, gallbladder, eyes, bones, and joints can suffer damage from the abnormal function of the sickle cells and their inability to flow through the small blood vessels correctly. Problems may include the following:
increased infections
leg ulcers
bone damage
early gallstones
kidney damage and loss of body water in the urine
eye damage
NO WEPOND FORMED AGAINST ME SHALL PROSPER IT WOULD NOT WORK.
What is a sickle cell crisis?
A sickle cell crisis happens when sickled red blood cells block small blood vessels that carry blood to your bones. This causes pain that can begin suddenly and last several hours to several days. You might have pain in your back, knees, legs, arms, chest or stomach. The pain can be throbbing, sharp, dull or stabbing. How often and how bad the pain gets varies a lot from person to person and from crisis to crisis.
You might be able to treat your pain crisis at home with medicines that you take by mouth. If these medicines don`t control your pain, or if you can`t keep fluids down, you might need to be treated in the emergency department. If your pain still isn`t controlled or you have other problems, you might need to be treated in the hospital.
What causes a sickle cell crisis?
Most of the time, you won`t know what caused your sickle cell crisis. A crisis usually has more than one cause. However, you can do several things to help keep a crisis from occurring:
Limit how much alcohol you drink.
Don`t smoke. If you do smoke, quit.
Exercise regularly but not so much that you become really tired. When you exercise, drink lots of fluids.
Drink at least 8 glasses of water a day, especially during warm weather.
Reduce or avoid stress. Talk to your doctor if you`re depressed or have problems with your family or job.
Treat any infection as soon as it occurs. When in doubt, see your doctor.
Wear warm clothes outside in cold weather and inside in air-conditioned rooms during hot weather. Also, don`t swim in cold water.
Tell your doctor if you think you might have a sleep problem, such as snoring, or if you sometimes stop breathing for short periods of time during sleep (called apnea).
If you have another medical condition, like diabetes, get treatment and control the condition.
If you are pregnant or plan to become pregnant, get early prenatal care.
Only travel in commercial airplanes. If you have to travel in an unpressurized aircraft, talk to your doctor about extra precautions.
Normal red blood cells are disc-shaped and very flexible. In sickle cell disease, some red blood cells can change shape so that they look like sickles or crescent moons. Because of their shape, they don`t move well through the smallest blood vessels. This can stop or slow blood flow to parts of the body, causing less oxygen to reach these areas. The sickle cells also die earlier than normal blood cells, which can cause a shortage of red blood cells in the body. There is no cure for sickle cell disease.
THE DEVIL SENTENCED ME TO DEATH BUT GOD GIVE ME A LIFE SENTENCED IT IS CLEAR THAT I`M HERE FOR A REASON AND GOD HAVE A PLAN IN STORE FOR ME, THANK YOU GOD.
You might be able to treat your pain crisis at home with medicines that you take by mouth. If these medicines don`t control your pain, or if you can`t keep fluids down, you might need to be treated in the emergency department. If your pain still isn`t controlled or you have other problems, you might need to be treated in the hospital.
What causes a sickle cell crisis?
Most of the time, you won`t know what caused your sickle cell crisis. A crisis usually has more than one cause. However, you can do several things to help keep a crisis from occurring:
Limit how much alcohol you drink.
Don`t smoke. If you do smoke, quit.
Exercise regularly but not so much that you become really tired. When you exercise, drink lots of fluids.
Drink at least 8 glasses of water a day, especially during warm weather.
Reduce or avoid stress. Talk to your doctor if you`re depressed or have problems with your family or job.
Treat any infection as soon as it occurs. When in doubt, see your doctor.
Wear warm clothes outside in cold weather and inside in air-conditioned rooms during hot weather. Also, don`t swim in cold water.
Tell your doctor if you think you might have a sleep problem, such as snoring, or if you sometimes stop breathing for short periods of time during sleep (called apnea).
If you have another medical condition, like diabetes, get treatment and control the condition.
If you are pregnant or plan to become pregnant, get early prenatal care.
Only travel in commercial airplanes. If you have to travel in an unpressurized aircraft, talk to your doctor about extra precautions.
What medicines can I use at home to control my pain?
Some over-the-counter medicines might help relieve mild pain. Tylenol aspirin or ibuprofen might help for your pain.
If you have moderate to severe pain, your doctor might prescribe a prescription pain reliever. Make sure to carefully follow your doctor`s instructions for taking the medicine.
What else can Ido to control the pain?
A heating pad, hot bath, rest or massage might help. Physical therapy to relax and strengthen your muscles and joints might lessen your pain. Individual counseling, self-hypnosis and activities to keep you from thinking about your pain (such as watching television or talking on the telephone) might also help.
MAYA IS A 27 YEAR OLD FEMALE WITH SICKLE CELL DISEASE, AND IS LIVING LIFE DAY TO DAY.
It`s important for you to have a positive attitude, create a supportive environment, and develop coping skills to help you deal with the disease. Strong family relationships and close personal friends can be helpful. A support group might also help you cope with the disease.
I REMEMBER AS A CHILD WAKING UP AT THE CRACK OF DAWN SCREEMING FROM A VIOLENT PAIN CRISIS AND DAD RUSHING TO MY BED SIDE TO COMFORT, ME AND TRY TO RUSH ME TO THE ER TO GET ME THE MEDICAL CARE I NEEDED I THANK GOD FOR HIM BARING WITH ME AND BEING THERE FOR ME, GOD BLESS U DAD YOU`RE THE BEST.
WHEN GOD MADE ME THERE WAS NO MISTAKE SO PLEASE DON'T FEEL SORRY 4 ME.
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